MS breakthrough!

Breakthrough! Breakthrough! We MSers love to hear and read about breakthroughs!

This one’s a promising one and I hope it will soon be approved do that we all can reap the benefits from it.

You can read the story about Ocrelizumab here:

http://www.dailymail.co.uk/health/article-3265300/Huge-breakthrough-MS-patients-thanks-game-changing-drug-dramatically-slows-progression-disease.html

And remember – hope is last to die! Stay positive!;)

S

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EBV-specific adoptive immunotherapy

it feels like most of the time news are centred around discoveries that seem to be focused on the RRMS types… I have just read this article and it seems to shed light also for SPMSers too! :)

Based on the patient’s Epstein Barr Virus (EBV) researchers have managed to ” harvest some of [the patient’s] own T cells and grow them in the lab together with an EBV vaccine. Then, the boosted cells are transferred back to the patient intravenously.”

Of course, as always, further tests are required but the results seem to be promising and the test patient claims to have experienced a change for the better. Read more about the treatment (EBV-specific adoptive immunotherapy) and the test patient’s experience here: http://www.medicalnewstoday.com/articles/272326.php#rate

 

Personal diary – MS Spasms abruptly disturb a quiet night’s sleep

hi, it has been a while.. and this is an unusual post from me… but… Im scared.. :/

I had a very strange and painful incident this Sunday. My whole body was spasming/twitching in the middle of the night (at about 3am). It lasted a good 20-30mins:( After I took some paracetamol and drank a bit it went away. The strange thing is that it was just like the flu like symptoms I had after my first interferon/avonex injection (as expected, being a side effect), but I haven’t had it since then..and that was ages ago (2005!)

And so yesterday my whole body was aching and even before I went to bed I could feel it in my arms and legs. Not the spasming, but more like pain in the muscles/joints. And every time when I got up to pee last night I had such difficulties walking because my right foot went completely numb! :(

I stayed at home today, couldn’t go to work :( Luckily I have a Tysabri appointment later this afternoon so I will talk to a doctor, see what he/she can tell me.

So what does my mind start wondering about..? I am thinking of death..is it nearby? Is it time? Just thoughts going through my mind..stupid thoughts. Will my boyfriend stay with me despite my potential disabilities? Although he really truly does love me, and I know that, can’t help but worrying on his behalf if he ends up with a challenged girlfriend…even though I know he knew from the beginning what MS could bring… silly huh? maybe you’ve had the same thoughts going through your head.. I just always think of the OTHER person, and how do OTHERS feel and how would this/that make THEM feel – it seems I always put others first rather than me, and my feelings and needs. I might need to work on that… but maybe it is just the way I am and I wont be able to do anything about it..

Just so you know, I have been on Tysabri since January 2009 (after Avonex failed on me following 4 years of weekly injections *chills*) and I have been very happy with it. I also have been confirmed, and re-confirmed that I (unfortunately) also carry the JC Virus.

Anyways, I am worried but I hope it is just a bad relapse… You are more than welcome to share your experiences with me, I’d be happy to hear from you!

Thanks! and stay positive;)
/S

A future possibility to predict MS?

Wow… it has really been ages… I really do want to try to keep as updated as I can and follow on news but sometimes work and tiredness gets to you doesn’t it… ? it can be hard to manage :/

I guess it is the thought that counts, and the fact that after all I manage to squeeze in a few lines once in a while… So, today I read something interesting:). One day in the (hopefully near) future they might be able to test for MS long before disease onset.

To find out more about the research conducted on this molecular marker click here.

Enjoy your day!

/S

A new, and unique, stem cell therapy for MS patients! :)

It is always great news to hear about the use of stem cells as therapies for MS. There seems to be great hope for the future with the use of these and we can only be positive about what is coming :)

I look very much forward to hearing the results of this research and hope we will all be able to benefit from it, soon :)

 

Enjoy the read: http://guardianlv.com/2013/08/unique-stem-cell-therapy-for-ms-patients/

 

Stay well!

/S

another MS breakthrough!

This is great news today :)

As we know, most of the medicine out there nowadays are so-called immunosuppressors – they “knock down” our immune response without selection leaving us highly susceptible to viruses and other infections.

What this new discovery aims at doing is targeting only the autoimmune response to myelin. And how is this done? “…intravenously with an infusion of (the patients. red) own white blood cells, which had been engineered to carry billions of myelin antigens.”

Researchers are hoping that the cells would teach the body to stop attacking myelin. Hope is last to die and remember, it is ‘just’ a breakthrough not a cure.. but we’re getting there!! :)
Read the full article here:

http://www.foxnews.com/health/2013/06/06/medical-breakthrough-for-multiple-sclerosis-sufferers/

/S

Promising trials – for MS as well – w. ADULT stem cells use! :)

More good news ahead this sunny day.. :

Using adult stem cells (not embryonic) the researchers have shown both sensation and motor improvements in patients with spinal cord injuries.

Read the whole article here: http://www.mycentraljersey.com/article/20130602/NJNEWS/306020011?odyssey=mod%7Cmostcom

 

Warm regards,

S

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